Mental health related experiences among African Caribbean, and Black immigrant and refugee families living with HIV/ AIDS in Greater Toronto Area, Canada
DOI:
https://doi.org/10.25071/1929-8471.137Resumen
Introduction: In 2021, there were nearly 38 million people living with HIV worldwide and approximately 61,110 in Canada. Africans, Caribbean people, and the Black community make up less than 3.5% of the Canadian population, but account for 22% of people living with HIV in Canada. Our study explores the mental health related experiences of African, Caribbean, Black immigrant families living with HIV in Canada’s Greater Toronto Area. Methods: A qualitative descriptive study was carried out between September, 2022 and December, 2023. Purposive sampling was used to select 20 participants, and semi-structured interviews were conducted. Content and thematic analyses of data were performed. Results: Participants ranged in age from 32 to 73 years, 60% were female, the majority had only completed college (65%), and most of them were not working. Three themes were identified: 1) HIV related struggles (neurocognitive impairment, HIV-related stigma and shame, racism and discrimination, and the impact of HIV-related stigma on mental health); 2) Systemic barriers (racism, stereotyping, systemic discrimination, employment and housing issues); and 3) social network building (isolation and solitude, disclosure dilemma). Discussion: Intersecting and complex factors associated with immigration and resettlement of African immigrants living with HIV affect their mental health and that of their families. Isolation and social exclusion are major stressors for these families, and their mental health is compromised by everyday encounters with systemic barriers. Conclusion: African immigrants and refugees living with HIV/AIDS experience mental health challenges related to co-morbidities caused by the HIV Virus. Integration of mental health services into HIV services would strengthen HIV prevention and care outcomes and improve access to mental health care.
Keywords: Immigrants and refugees, HIV/AIDS, mental health, families, Canada.
Citas
Akhtar, N.F., Garcha, R.K., Solomon, P. (2017). Experiences of women aging with the human immuno-deficiency virus: A qualitative study: Expériences vécues par des femmes vieillissant avec le virus de l'immunodéficience humaine : étude qualitative. Canadian Journal of Occupational Therapy, 84, 253–261.
Abdelkerim, A. A., & Grace, M. (2012). Challenges to employment in newly emerging African communities in Australia: A review of the literature. Australian Social Work, 65(1), 104-119.
Canada’s Course for HIV and Hepatitis C Information (CATIE). (2024). The Epidemiology of HIV in Canada. Retrieved from https://www.catie.ca/the-epidemiology-of-hiv-in-canada
Chibanda, D., Cowan, F., Gibson, L., Weiss, H.A., & Lund, C. (2016). Prevalence and correlates of probable common mental disorders in a population with high prevalence of HIV in Zimbabwe. BMC Psychiatry, 16(55), 1-11.
Cruz, G., & Ramos, L.R. (2015). Functional limitation and disabilities of older people with acquired immunodeficiency syndrome. Acta Paulista de Enfermagem, 28(5), 1-6. https://www.scielo.br/j/ape/a/DxrWm7VfB8GdrwzHwKws7Hk/?lang=en&format=pdf
Freedman, J. (2016). Sexual and gender-based violence against refugee women: A hidden aspect of the refugee Crisis. Reproductive Health Matters, 24, 18–26.
Haddad, N., Roberta, A., Weeks, A., Popovic, N., Siu, W., & Archibald, C. (2019). HIV in Canada–surveillance report, 2018. Canada Communicable Disease Report, 45(12), 304-312. doi:10.14745/ccdr.v45i12a01
Kamanzi, J., & Richter, S. (2019). Protocol for a scoping review of the literature about use of the PMTCT (prevention of mother to child transmission) program. International Journal of Nursing Student Scholarship, 6(36), 1-10. Retrieved from https://journalhosting.ucalgary.ca/index.php/ijnss/article/view/68204
Kamanzi, J., & Richter, S. (2022). Self-Efficacy in the Context of PMTCT of HIV: A Concept Clarification. International Journal of Medical Science and Health Research, 6(6), 1-13. doi:10.51505/ijmshr.2022.6604
Kamanzi, J., Richter, S. Paul, P., & Jarvis, K. (2021). Use of critical ethnography to study the PMTCT program. Advances in Infectious Diseases, 12, 147-158. doi:10.4236/aid.2022.121013
Kamanzi, J., Richter S.M., Paul, P., Jarvis, K. (2022). Social Determinants of Health that Influence the Uptake of the PMTCT Program. International Journal of Nursing and Health Care Research, 5(11), 1362. doi:10.29011/2688-9501.101362
Kamanzi, J., & Richter, S. (2023). Socio-cultural Factors Influence the Uptake of the Prevention of Mother-to-child Transmission (PMTCT) Program: A Critical Ethnographic Study. International Journal of Medical Science and Health Research, 7(3(1-15). doi:10.51505/ijmshr.2023.7304
Kastrup, K. (2016). The impact of racism and discrimination on mental health of refugees and Asylum seekers. European Psychiatry, 33(S43), 1-10.
Logie, C.H., Jerkinson, J.R., Earnshaw, V., Tharao, W., &Loufty, M. (2016). A structural equation model of HIV-related stigma, racial discrimination, housing, insecurity, and wellbeing among African and Carribean Black Women Living with HIV in Ontario. PLoS ONE, 11(e01622826), 1-17.
Luenen, S., Garnefski, N., Spinhoven, P., Spaan, P., Dusseldorp, E., & Kraaij, V. (2018). The benefits of psychosocial interventions for mental health in people living with HIV: A systematic review and metanalysis. AIDS Behaviour, 22(1), 9–42.
Marino, C.K. (2015). To belong, contribute, and hope: First stage development of a measure of social recovery. Journal of Mental Health, 24, 68–72.
Nall, R. (2022). How to Apply for Disability Benefits Due to HIV. Retrieved from https://www.healthline.com/health/how-to-apply-for-disability-benefits-due-to-hiv
Nwalutu, F. I., & Nwalutu, M. O. (2021). Skilled Female New Canadians and Mental Health Challenges: Effect of Unemployment and Underemployment. In: Abegunrin, O., Abidde, S.O. (eds) African Migrants and the Refugee Crisis. Springer, Cham.
Orza, L., Bewley, S., Logie, C.H., Tyler Crone, E., Moroz, S., Strachan, S., Vazquez, M., Welbourn, A. (2015). How Does Living with HIV Impact on Women’s Mental Health? Voices from a Global Survey. Journal of International AIDS Societies, 18(20289), 1-18.
Public Health Agency of Canada. (2023). HIV in Canada: 2022 surveillance highlights. Ottawa: Public Health Agency of Canada. Available at: https://www.canada.ca/en/public-health/services/publications/diseases-conditions/hiv-2022-surveillance-highlights.html
Remien, R.H., Stirratt, M.J., Nguyen, N., Robbins, R.N., Pala, A.N., & Mellins, C.A. (2019). Mental health and HIV/AIDS: The need for an integrated response. AIDS, 33(9), 1411–1420.
Saadat, M., Behboodi, Z., & Saadat, E. (2015). Comparison of depression, anxiety, stress, and related factors among women and men with human immunodeficiency virus infection. Journal of Human Reproductive Sciences, 8(1), 48–51.
Samhkaniyan, E., Mahdavi, A., Mohamadpour, S., & Rahmani, S. (2015). The effectiveness of mindfulness-based cognitive therapy on quality of life and loneliness of women with HIV. Journal of Medical Life, 8(Spec Iss 4), 107–113.
Sandelowski, M. (2010). What’s in a name? Qualitative descriptive revised. Research in Nursing & Health, 33, 77-84.
Sweeney, S., &Vanable, P. (2016). The association of HIV-related stigma to HIV medication adherence: A systematic review and synthesis of the literature. AIDS Behaviour, 20(1), 29–50.
Turan, B., Smith, W., Cohen, M.H., et al. (2016). Mechanisms for the negative effects of internalized HIV-related stigma on antiretroviral therapy adherence in women: The mediating roles of social isolation and depression. Journal of Acquired Immune Deficiency Syndrome, 72(2), 198–205.
Vitale, A., & Ryde, J. (2018). Exploring Risk Factors Affecting the Mental Health of Refugee Women Living with HIV. y (ART), mortality and the morbidity rates of individuals. International Journal of Environmental Research and Public Health,15(2326), 1-18. doi:10.3390/ijerph15102326
Wagner, A., Logie, C., Conway, T., et al. (2018). High rates of posttraumatic stress symptoms in women living with HIV in Canada. PLoS One, 13(7), e0200526
Waldron, E.M., Burnett-Zeigler, I., Wee, V., Ng, Y.W., Koenig, L.J., Pederson, A.B… Miller, E.S. (2021). Mental health in women living with HIV: The unique and unmet needs. Journal of the International Association of Providers of AIDS Care, 20, 1-18. doi:10.1177/2325958220985665
WHO. (2016). Global Health Sector Strategy on HIV 2016–2021—Towards Ending AIDS. Geneva, Switzerland. World Health Organization 2016. Available online: http://apps.who.int/iris/bitstream/handle/10665/246178/WHO-HIV-2016.05-eng.pdf; jsessionid=89158F2C8ED9847F25A28F5AAB258D5A?sequence=1 (accessed on 20 June 2018).
Wong, J.P.H., Li, A.T.W., Poon, M.K., & Fung, K.P. (2013). An exploratory study on the mental health of immigrants, refugees and non-status people living with HIV in Toronto. International Journal of Migration, Health, and Social Care Journal, 9(3), 122-134. doi:10.1108/ijmhsc-07-2013-0026
Yehia, B.R., Stephens-Shield, A.J., Momplaisir, F., Taylor, L., Gross, R., Dubé, B… Brady, K.A. (2015). Health Outcomes of HIV-Infected People with Mental Illness. AIDS Behaviour, 19, 1491–1500.
Zeng, C., Li, L., Hong, Y.A., Zhang, H., Babbitt, A.W., Liu, C... Cai, W. (2018). A structural equation model of perceived and internalized stigma, depression, and suicidal status among people living with HIV/AIDS. BMC Public Health, 15(138), 1-18
Descargas
Publicado
Cómo citar
Licencia
Derechos de autor 2023 Joyce Kamanzi, Nazilla Khanlou, Fanta Ongoiba, Attia Khan
Esta obra está bajo una licencia internacional Creative Commons Atribución 4.0.
Copyright for all content belongs to the author(s). All materials are published with a CC BY 4.0 license.